Background:Forensic psychiatry is an area of healthcare with specific contextual issues that can affect the experiences and effects of interventions. Understanding the patient perspective is therefore crucial when assessing interventions for forensic psychiatry. SBU was commissioned by the Swedish Government to assess methods used for treatment in forensic psychiatry in two steps. The first step was to identify systematic reviews in forensic psychiatry and determine which domains have not yet been systematically reviewed. The second step is to produce two systematic reviews for identified scientific evidence gaps.
Objectives:To involve the patient organisation in various ways during scoping, formulation of PICOs and discussing the interpretation of results. And evaluate the potential benefits of doing so for end users of our reports.
Methods:The swedish patient organisation for patients in forensic psychiatry and relatives, PAR has been involved in early discussion as well as responding to a survey and interviews on the topics. They have also made an audience review on a qualitative evidence synthesis of patient experiences of care.
Results: By involving the patient organisation in various ways in these projects, we made unexpected findings of interest for the forensic psychiatric care system, for example the importance of studying care as well as interventions. These findings and their implications will be presented and discussed at the colloquium.
Conclusions: Involving PAR in assessments of interventions in forensic care turn out to increase the relevance of our results for the target audience by adding context specific perspectives. This work is presented in collaboration with PAR.
Patient or healthcare consumer involvement: The Swedish organisation for patients in forensic psychiatry and relatives, PAR, was involved in a mapping project followed by two Systematic Reviews.