Introduction/Objective: To assess the content and presentation of patient information materials to see how far they accurately reflect research evidence on treatment options and outcomes and to investigate patients' responses to these materials.

Methods: A wide range of information providers (patient groups, hospitals, health authorities, professional bodies, publishers and drug companies) were surveyed to identify the availability of leaflets, booklets, tapes and videos on back pain, benign prostatic hypertrophy, cataract, raised cholesterol, depression, stroke rehabilitation, hip replacement, menorrhagia, glue ear, and sub-fertility. Materials presenting more than one treatment option and referring to outcomes were assessed by specialists in each of the clinical topics and by ten condition-specific patient focus groups.

Results: The availability of evidence-based patient information to inform choice is still limited. Patients criticised some materials for being superficial, patronising and lacking in detail, particularly about risks and alternatives. Subject specialists found some materials failed to reflect the evidence-base: they were not comprehensive or precise. Characteristics of good quality information materials as perceived by patients and experts will be outlined.

Discussion: If patients are to be encouraged to express their preferences and participate actively in decisions about their care, they will need access to good quality information packages and decision aids to support informed choice. Many of the existing information materials do not meet the standards required by patients and experts.