Article type
Year
Abstract
Background: The importance of consumer participation in evidence-based medicine (EBM) is increasingly recognized in the spectrum of healthcare in developed countries, while it is just at the beginning stage and somewhat difficulty to imitative in China.
Objective: To investigate baseline data of the current status of patients in China, and thus to develop strategies to get patients involved in EBM.
Method: 300 questionnaire with 17 questions were distributed to the inpatients in the departments of neurology, geriatrics, neonatal, communication disease and endocrine disorder. As part of survey, data were collected on: 1) the information about the disease that the patients got before treatment; 2) how and in what way they to access the information; 3)the degree to learn information about the diseases; 4)treatment involvement;5) the satisfaction with the current treatment; 6)the concerns and difficulties etc.
Results: (1) basic information: 251 feedback received. Gender: 137 male and 114 female; Ages: 140 of patients are over 50; Education: 169 were only in middle school education and the rest were in higher education; (2) how much information they got before treatment: 160 learned some information about their disease and the rest knew nothing; (3) where did they get: 169 from their clinicians, 65 from medical journals and newspaper, 12 from TV and radio, 8 from Internet; (4) the way they get health information from: 179 thought it should be from their clinicians, 35 thought from medical journals, 12 thought from friends and the rest from Internet and TV ; (5) treatment involvement: 234 would like to get involved, 12 do not care much, 8 refuse; (6) the satisfaction with the treatment: 126 were quite satisfied, 108 satisfied, the rest do not; (7) the concerns: 146 concerned with the effectiveness of the current treatment, 69 concerned about the cost and 22 concerned with the quality of hospital service, the rest concerned whether the clinicians qualified enough; (8) the difficulties: 130 thought the limited time to communicate with their clinicians, 62 thought long time waiting before receiving the treatment, the rest thought the poor attitude from the clinicians and the poor conditions of the hospital.
Conclusions: Based on the above baseline data, we have created some strategies including education and training both for the clinicians and patients about EBM and Collaboration, dissemination via various media such as Centre newsletters and Chinese EBM Journals, TV and homepage for raising awareness, attending the related patients club to promote the communication between clinicians and patients, etc. Though there is a long way for us to go, we feel full of confidence that the Chinese consumer will get involved in the Collaboration.
Objective: To investigate baseline data of the current status of patients in China, and thus to develop strategies to get patients involved in EBM.
Method: 300 questionnaire with 17 questions were distributed to the inpatients in the departments of neurology, geriatrics, neonatal, communication disease and endocrine disorder. As part of survey, data were collected on: 1) the information about the disease that the patients got before treatment; 2) how and in what way they to access the information; 3)the degree to learn information about the diseases; 4)treatment involvement;5) the satisfaction with the current treatment; 6)the concerns and difficulties etc.
Results: (1) basic information: 251 feedback received. Gender: 137 male and 114 female; Ages: 140 of patients are over 50; Education: 169 were only in middle school education and the rest were in higher education; (2) how much information they got before treatment: 160 learned some information about their disease and the rest knew nothing; (3) where did they get: 169 from their clinicians, 65 from medical journals and newspaper, 12 from TV and radio, 8 from Internet; (4) the way they get health information from: 179 thought it should be from their clinicians, 35 thought from medical journals, 12 thought from friends and the rest from Internet and TV ; (5) treatment involvement: 234 would like to get involved, 12 do not care much, 8 refuse; (6) the satisfaction with the treatment: 126 were quite satisfied, 108 satisfied, the rest do not; (7) the concerns: 146 concerned with the effectiveness of the current treatment, 69 concerned about the cost and 22 concerned with the quality of hospital service, the rest concerned whether the clinicians qualified enough; (8) the difficulties: 130 thought the limited time to communicate with their clinicians, 62 thought long time waiting before receiving the treatment, the rest thought the poor attitude from the clinicians and the poor conditions of the hospital.
Conclusions: Based on the above baseline data, we have created some strategies including education and training both for the clinicians and patients about EBM and Collaboration, dissemination via various media such as Centre newsletters and Chinese EBM Journals, TV and homepage for raising awareness, attending the related patients club to promote the communication between clinicians and patients, etc. Though there is a long way for us to go, we feel full of confidence that the Chinese consumer will get involved in the Collaboration.