From Patient to Advocate

Article type
Authors
Ford P1
1Consumer Reviewer/Research Patient Advocate, USA
Abstract
Here is a living example of two causes that have become a passion; early detection of ovarian cancer and timely referral of patients into the care of a gynecologic oncologist. Before her crisis with ovarian cancer, this individual chose mostly alternative healing methods. Impressed with the diversity of care the western medical system now offers, she moved toward advocacy to spread awareness of the benefits of interweaving both types of care. She pursued advocacy for many reasons, but most importantly to put ovarian cancer at the forefront of medical doctors' minds. Early diagnosis is crucial to saving more women’s lives. The overall survival rate for ovarian cancer is very poor, but when diagnosed early, survival rates greatly improve. Until there is a screening test, women must rely on the awareness of healthcare providers. She strives to ensure that all women understand their bodies and get care in a timely fashion. Her journey begins by discovering and successfully launching an innovative educational program, 'Survivors Teaching Students’, of the Ovarian Cancer National Alliance for third year medical students at UC San Diego reflecting outstanding success in two short years. To reach practicing medical doctors, she partners with a gynecologic oncologist in his grand rounds at major hospitals. Her commitment as a guest speaker, facilitator, or writer for community outreach efforts, blossomed into a voice for the ovarian cancer community on a local, national, and international level. Her diverse advocacy efforts are outlined from attending medical conferences as a research patient advocate, participating as a consumer reviewer, and legislative advocacy for ovarian cancer funding. With appreciation for the advances in research, her poster highlight’s patient advocates' roles as the bridge between the scientific/medical world to the patient community and to work hand-in-hand to advance research and impact change to better serve both communities.