Article type
Year
Abstract
Background:
Consideration of patients’ values and preferences (VPs) is an important issue in developing systematic reviews (SR) and clinical practice guidelines (CG). In the SR development process, taking VPs into consideration can improve the outcome selection process. In CG it is crucial to consider VPs when making a recommendation. However, identification of literature informing about how patients place values to outcomes is complex and difficult to retrieve due to the poor indexing of studies. There is not a specific database for this type of evidence, as opposed to other fields.
Objectives:
To develop an open-access and web-based database of relevant VPs literature as part of a broader research programme on this topic.
Methods:
We are developing an on-line database that will store the relevant literature in this field. Studies will be organized according to: health topic; population; design, type of estimate (e.g. utility or qualitative and quantitative narratives), instrument and approach used. We will develop a structured summary for each included study that will collect its characteristics, main results and risk of bias. We are testing the process in the fields of glaucoma, chronic obstructive pulmonary disease (COPD) and lung cancer. The project has received funding from the Spanish Ministry of Health (PI13/02848).
Results:
We will present the database prototype, results of the pilot test and present strategies to disseminate the resource within the SR and CG community.
Conclusions:
The availability of a database of abstracts of relevant studies on VPs will ease their incorporation in the development of SRs, and will enhance SRs' usability in the process of knowledge translation, and the formulation of recommendations as suggested by the Grading of Recommendations Assessment, Development and Evaluation (GRADE) Working Group.
Consideration of patients’ values and preferences (VPs) is an important issue in developing systematic reviews (SR) and clinical practice guidelines (CG). In the SR development process, taking VPs into consideration can improve the outcome selection process. In CG it is crucial to consider VPs when making a recommendation. However, identification of literature informing about how patients place values to outcomes is complex and difficult to retrieve due to the poor indexing of studies. There is not a specific database for this type of evidence, as opposed to other fields.
Objectives:
To develop an open-access and web-based database of relevant VPs literature as part of a broader research programme on this topic.
Methods:
We are developing an on-line database that will store the relevant literature in this field. Studies will be organized according to: health topic; population; design, type of estimate (e.g. utility or qualitative and quantitative narratives), instrument and approach used. We will develop a structured summary for each included study that will collect its characteristics, main results and risk of bias. We are testing the process in the fields of glaucoma, chronic obstructive pulmonary disease (COPD) and lung cancer. The project has received funding from the Spanish Ministry of Health (PI13/02848).
Results:
We will present the database prototype, results of the pilot test and present strategies to disseminate the resource within the SR and CG community.
Conclusions:
The availability of a database of abstracts of relevant studies on VPs will ease their incorporation in the development of SRs, and will enhance SRs' usability in the process of knowledge translation, and the formulation of recommendations as suggested by the Grading of Recommendations Assessment, Development and Evaluation (GRADE) Working Group.