Ensuring that patient-centered outcomes are included in research

Article type
Authors
Dickersin K1, Saldanha I2, Fitton N3, Zhang M4, Lyddiatt A5, Simi S6
1US Cochrane Center
2Cochrane Eyes and Vision Group / US Cochrane Center
3CCNet, Eyes and Vision Group
4Chinese Cochrane Centre
5CCNet, Canada
6CCNet, Italy
Abstract
Objective:
To gain hands-on experience of suggesting outcomes that should be examined in Cochrane systematic reviews.

Description:
In many countries, those performing systematic reviews ask consumers to contribute to priority setting, to comment on topics as they are refined, and to suggest outcomes of importance to patients and their carers. We will discuss 'outcomes' and specifically 'patient-centered outcomes', examine outcomes used in Cochrane Reviews pertaining to the workshop participants’ interests, and describe outcomes that should be included in that group’s reviews, how outcomes should be specified, and if any outcomes are missing (e.g. quality of life, the relative benefits and harms). All enrolled participants are invited to submit their review group(s) of interest and we will prepare outcomes used by that group ahead of the workshop. In the workshop, we will:
- break into work groups to discuss the patient-centered outcomes related to the review areas of interest;
- report back to the larger group the outcomes each group proposed; and
- assist with preparing a note to the relevant review groups about our findings.

All attendees are encouraged to complete the online course, Understanding Evidence-based Healthcare: A Foundation for Action prior to the workshop (see http://us.cochrane.org/understanding-evidence-based-healthcare-foundation-action).