Article type
Year
Abstract
Background:
Patient involvement has been emphasized by Cochrane Collaboration. However, little is known about the extent to which patient involvement in shared decision making has been covered in Cochrane systematic reviews (CSRs).
Objectives:
To investigate patient involvement in shared decision making in The Cochrane Library including their coverage of the publication, country of origin and disease distribution.
Methods:
We searched the online version of The Cochrane Library for systematic reviews using the term ‘patient\consumer involvement’, ‘patient\consumer participation’ and ‘decision making’ from 1989 to February 2014. Microsoft Excel 2007 was used to perform data extraction and analysis.
Results:
In total there were 8217 CSRs published, of which only 111(1.4%) reviews were associated with patient involvement in shared decision making. Within the 111 reviews, less than 10 reviews were relevant to 'patient involvement' from 1998 to 2006. However this number increased from 2010 to 2013, with 12, 15, 15 and 22 reviews respectively. The distributions of CSRs were mainly in the Consumer and Communication Group (15), Stroke Group (10), Effective Practice and Organization of Care Group (8), Musculoskeletal Group (7), and Multiple Sclerosis and Rare Diseases of the Central Nervous System Group (5). Among the total of 111 CSRs, 102 (92%) first authors were from developed countries, 41 of whom were from UK. Only six first authors were from developing countries including Brazil (4), Venezuela (1), Chile (1), China (1), India (1) and Thailand (1). Meanwhile, the institutions of the first authors mostly were universities (52%), colleges (10%) and hospitals (8%).
Conclusions:
Although patient involvement in both research and clinical practice is emphasized by the Collaboration, there is not much evidence to support this. Hopefully ‘patient involvement research’ will be focused in future CSRs.
Patient involvement has been emphasized by Cochrane Collaboration. However, little is known about the extent to which patient involvement in shared decision making has been covered in Cochrane systematic reviews (CSRs).
Objectives:
To investigate patient involvement in shared decision making in The Cochrane Library including their coverage of the publication, country of origin and disease distribution.
Methods:
We searched the online version of The Cochrane Library for systematic reviews using the term ‘patient\consumer involvement’, ‘patient\consumer participation’ and ‘decision making’ from 1989 to February 2014. Microsoft Excel 2007 was used to perform data extraction and analysis.
Results:
In total there were 8217 CSRs published, of which only 111(1.4%) reviews were associated with patient involvement in shared decision making. Within the 111 reviews, less than 10 reviews were relevant to 'patient involvement' from 1998 to 2006. However this number increased from 2010 to 2013, with 12, 15, 15 and 22 reviews respectively. The distributions of CSRs were mainly in the Consumer and Communication Group (15), Stroke Group (10), Effective Practice and Organization of Care Group (8), Musculoskeletal Group (7), and Multiple Sclerosis and Rare Diseases of the Central Nervous System Group (5). Among the total of 111 CSRs, 102 (92%) first authors were from developed countries, 41 of whom were from UK. Only six first authors were from developing countries including Brazil (4), Venezuela (1), Chile (1), China (1), India (1) and Thailand (1). Meanwhile, the institutions of the first authors mostly were universities (52%), colleges (10%) and hospitals (8%).
Conclusions:
Although patient involvement in both research and clinical practice is emphasized by the Collaboration, there is not much evidence to support this. Hopefully ‘patient involvement research’ will be focused in future CSRs.