How to provide evidence-based information and translate Cochrane reviews to lay people in a deliberative setting: the Italian and the Australian citizen juries experience on population screening

Article type
Authors
Colombo C1, Mosconi P2, Glasziou P3, Rychetnik L4
1IRCCS-Istituto di Ricerche Farmacologiche Mario Negri, Milano, Italy
2IRCCS Institute Mario Negri
3Centre for Research in Evidence-Based Practice - Bond University, Gold Coast
4School of Medicine Sydney, University of Notre Dame Australia, Sydney; School of Public Health, University of Sydney, Sydney, Australia
Abstract
Objectives: To discuss:
1. how to provide evidence-based information and translate Cochrane Reviews to lay people in a deliberative setting;
2. how the selection of sources and presenters of evidence and the facilitation of the process could influence the jurors deliberation, knowledge, and attitudes.
Description: Three early citizen juries in Italy were on population carrier screening for cystic fibrosis (2012 to 14), followed by one on prostate cancer screening in 2013. In the same period one on prostate cancer screening was organized in Australia.The Australian and Italian citizen juries will be described (15 min) and compared, with a focus on the general framework of their processes, type and sources of information, how evidence-based sources were disseminated, and the findings. In small groups, participants will discuss the Italian and the Australian experiences (40 min) and simulate the deliberative process. Each group will receive a summary of the information given to the jurors, a form summarizing the main steps of the process, and the findings. Groups will be asked to comment on the jury methods: whether information provided to the jurors was complete, useful and balanced; if the processes were appropriate for a citizen jury on the topic covered; if the findings were influenced by some aspects; how the process could be improved. Group deliberations will inform the subsequent debate (35 min) on the use of juries to inform population screening decisions.