Objective: To user test an early phase of the new Open Trials project database and website that aims to gather, link, and present all data and documents on all trials.
Description: The Open Trials project launched in April 2015. It aims to produce an open, easy-to-use, linked database of information about the world’s clinical trials, drawing together information from multiple sources, inviting crowdsourced additions, and presenting the information in various formats to various communities. The overall aim is to improve access to information about trials, and to increase transparency. The project is conducted in partnership with the Center for Open Science and supported by the Center’s Open Science Framework.
A database can help:
- identify knowledge gaps, by identifying completed trials without results;
- produce leaderboards on the drugs/investigators/sponsors with the most withheld data;
- identify biased outcome reporting, by presenting various different reports on a trial’s results side by side;
- make other documents about a trial, such as consent forms and protocols, easier to discover;
- provide a user-friendly home for existing structured data that has been created about a trial;
- create a platform where users can annotate trials with additional information.
We want to learn:
- what are we doing wrong?
- how can we do it better?
- what problems might this project help solve for you?
- what features would you like us to implement for you?