The development of an international practice guidelines registry platform

Article type
Year
Authors
Chen Y1, Wang M2, Yang K1
1Evidence-Based Medicine Center of Lanzhou University, China
2The First Hospital of Lanzhou University, China
Abstract
Background: In 2008 the World Health Organization (WHO) established the International Clinical Trials Registry Platform (ICTRP) and the registration of all intervention trials is now regarded as a scientific, ethical and moral responsibility. In 2011 PROSPERO, an international prospective register of systematic reviews was launched and it aims to provide a comprehensive listing of systematic reviews registered at inception to help avoid unplanned duplication and enable comparison of reported review findings with what was planned in the protocol. However, very few organizations and programs focus on registration for practice guidelines.

Objectives: To develop an International Practice Guidelines Registry Platform (IPGRP).

Methods: Literature review, focus group and database development.

Results: The International Practice Guidelines Registry Platform (IPGRP) was established on 1 January 2014. This initiative provides a free and open platform for practice guidelines internationally. The platform has three databases, guideline methodologists, systematic reviewers and representatives of patients and the public. About 20 organizations and institutions have endorsed the program. It is estimated that 20 to 30 practice guidelines on clinical medicine, public health and health policy as well as traditional Chinese medicine will register before 2016 G-I-N. The official website is www.guidelines-registy.org.

Conclusions: The registration of practice guidelines will not only make the development process more transparent and decrease duplication but also will promote collaboration between different developers as well as dissemination and implementation. It is expected that IPGRP, together with the two programs of ICTRP and PROSPERO may constitute a more comprehensive registration system for clinical trials, systematic reviews and practice guidelines in the future.