Barriers to successful patient and public involvement on guideline panels and strategies to overcome them

Article type
Authors
Schaefer C1, Morley R2, Santesso N3, Cowl J4, van der Weijden T5, Graham K6, Datar R7
1German Agency for Quality in Medicine
2Cochrane
3Cochrane Canada, GRADEing Methods Group, McMaster University
4National Institute for Health and Clinical Excellence
5Mastricht University
6NHS HEALTHCARE IMPROVEMENT SCOTLAND
7Consumers united for Evidence-based Health Care (CUE)
Abstract
Objectives:
• To share international experience, problems and pitfalls and best practice examples of patient and public involvement (ppi) in guidelines;
• To identify barriers to successful ppi and to prioritise the barriers that are known to have much impact and to be influential;
• To analyse if there are specific strategies that may help to overcome the most relevant barriers;
• To share current methodological resources (e.g. G-I-N PUBLIC Toolkit, CUE’s video series) for ppi in guidelines with all stakeholders and discuss ways to build on them.

Description:
In a short introduction, participants will be asked to share their background and experience of patient and public involvement in guidelines. Voices of patients/consumers on their experience of involvement will be presented.
A brief presentation will present the results of a 2016 workshop held by G-I-N PUBLIC and CUE that tried to identify barriers to successful ppi and share the strategies that G-I-N PUBLIC and CUE have identified to overcome these barriers.
In small group breakouts, participants will add to the presented barriers based on their own experience. Results will be summarised collectively.
In an open discussion, participants will prioritise the most relevant barriers, identify strategies to overcome these and discuss if these are sufficiently addressed in current methodologies of ppi like the G-I-N PUBLIC toolkit and identify areas for improvement.