Article type
Abstract
"Background:
Evidence-based patient guidelines (PatLL) are translations of evidence-based practice guidelines into lay language. PatLL act as reliable and high-quality patient information. They allow patients access to information that may otherwise be incomprehensible to laypersons due to the high complexity of practice guidelines. Topics include diagnostics, treatment and aftercare. The compactness in topics of PatLL allow patients to make informed decisions based on reliable and evidence-based information – thus also holding a high relevance to the public.
Objectives:
To create evidence-based and accessible PatLL by transforming the complex content of clinical practice guidelines and adding information relevant for patients.
Methods:
First, an evidence-based practice guideline is created following strict and established methodology. The PatLL process is conducted in collaboration with patients/representatives and clinical experts. In order to ensure consistency between the guidelines, a predefined template is used. The initial outline is reviewed, prioritizing topics based on their significance for patients. The writing process ensures the gathering of recommendations, translated into clear, lay language with concise sentence structures. Subsequent to the first draft, multiple feedback rounds involving patients/representatives and clinical experts are conducted. The finalized version of the PatLL is then online and booklet along with a comprehensive methods report.
Results:
The PatLL multiple myeloma and Hodgkin lymphoma was published 2023. The PatLL on diffuse large b-cell lymphoma and Covid-19 are being created at our institute and are planned to be finalised in summer 2024. Further PatLL are planned. Various guidelines are currently in development at our institute, with information successfully translated into lay language. Overcoming challenges in accurately conveying recommendations without distorting information and maintaining concise sentence structures involved two authors independently drafting chapters and reviewing each other’s work. Determining the relevance of information for patients posed another challenge, which was addressed through close collaboration with patients/representatives and clinical experts. However, addressing individual patient needs in the PatLL was limited due to the necessity for concise and understandable information.
Conclusion:
Each PatLL comes with unique but similar challenges. These were overcame mainly by close collaboration of a multidisciplinary team, which also allows for highly relevant, understandable and reliable patient information. "
Evidence-based patient guidelines (PatLL) are translations of evidence-based practice guidelines into lay language. PatLL act as reliable and high-quality patient information. They allow patients access to information that may otherwise be incomprehensible to laypersons due to the high complexity of practice guidelines. Topics include diagnostics, treatment and aftercare. The compactness in topics of PatLL allow patients to make informed decisions based on reliable and evidence-based information – thus also holding a high relevance to the public.
Objectives:
To create evidence-based and accessible PatLL by transforming the complex content of clinical practice guidelines and adding information relevant for patients.
Methods:
First, an evidence-based practice guideline is created following strict and established methodology. The PatLL process is conducted in collaboration with patients/representatives and clinical experts. In order to ensure consistency between the guidelines, a predefined template is used. The initial outline is reviewed, prioritizing topics based on their significance for patients. The writing process ensures the gathering of recommendations, translated into clear, lay language with concise sentence structures. Subsequent to the first draft, multiple feedback rounds involving patients/representatives and clinical experts are conducted. The finalized version of the PatLL is then online and booklet along with a comprehensive methods report.
Results:
The PatLL multiple myeloma and Hodgkin lymphoma was published 2023. The PatLL on diffuse large b-cell lymphoma and Covid-19 are being created at our institute and are planned to be finalised in summer 2024. Further PatLL are planned. Various guidelines are currently in development at our institute, with information successfully translated into lay language. Overcoming challenges in accurately conveying recommendations without distorting information and maintaining concise sentence structures involved two authors independently drafting chapters and reviewing each other’s work. Determining the relevance of information for patients posed another challenge, which was addressed through close collaboration with patients/representatives and clinical experts. However, addressing individual patient needs in the PatLL was limited due to the necessity for concise and understandable information.
Conclusion:
Each PatLL comes with unique but similar challenges. These were overcame mainly by close collaboration of a multidisciplinary team, which also allows for highly relevant, understandable and reliable patient information. "