Exploring methods for creating or adapting evidence-based knowledge mobilization resources for culturally and linguistically diverse audiences: a scoping review

Article type
Authors
Bialy L1, Elliott S2, Hartling L2, Scott S3
1Alberta Research Centre for Health Evidence, Edmonton, Alberta, Canada
2Cochrane Child Health, Edmonton, Alberta, Canada; Alberta Research Centre for Health Evidence, Edmonton, Alberta, Canada
3Faculty of Nursing, University of Alberta, Edmonton, Alberta, Canada
Abstract
Background: Knowledge Mobilization (KMb) involves actioning evidence to inform healthcare decisions and ultimately improve health outcomes. Recognized barriers to or determinants of effective KMb are differences in culture, language, and social customs and norms among end users of the evidence. Understanding how best to work with and create KMb resources for groups often underrepresented in science can empower them, creating a more equitable health system.

Objectives: To understand current approaches and methods when developing KMb resources (eg, patient decision aids, educational resources) for culturally and linguistically diverse (CALD) audiences

Methods: We searched 3 databases (Ovid Medline, CINAHL via EBSCOhost, PsychINFO) from 2011 until August 2023. We included any literature about KMb product creation or adaptation processes serving CALD communities. A primary reviewer screened all identified publications, and a second reviewer screened publications excluded by the primary. Data were extracted using standardized forms by one reviewer and verified by a second reviewer. Studies were categorized by type of adaptation ("surface" or "deep" structure) and mapped based on type of stakeholder engagement used (Integration and Implementation Sciences (i2S) model).

Results: 10,299 unique titles and abstracts were reviewed, 670 full-text studies were retrieved and reviewed, and 78 studies were included in final data extraction and mapping. Twenty-four studies (31%) developed exclusively text-based KMb resources (eg, leaflets and pamphlets), and 52 (67%) produced digital resources (eg, videos [n = 16, 31%], mobile applications [n = 14, 27%], and eHealth websites [n = 9, 17%]. Twenty-five studies (32%) reported following a framework or theory for their processes. Only 9 studies (12%) demonstrated and applied all 5 (Inform, Consult, Involve, Collaborate, and Support) levels of stakeholder engagement. Thirty-one (40%) studies included reflections from the research teams on the processes for creating or adapting KMb resources for CALD communities.

Conclusions: Various methods are used to contextualize evidence and develop KMb resources for CALD communities. Successful uptake of KMb resources was often the result of collaboration with end users for more applicable, accessible, and meaningful resources.

Based on this work, a methods working group, including consumers, has been developed to drive the creation of key considerations for how to linguistically and culturally develop KMb resources.