Promoting continual dialogue through engagement and illustration: a qualitative research project on involvement in generating and critiquing evidence within HTA

Article type
Authors
Johnson E1, Belilios E2, Smith D2, Harmston B2, Pearson F1
1Newcastle University, Newcastle upon Tyne, UK; NIHR Innovation Observatory, Newcastle upon Tyne, UK
2The Newcastle upon Tyne Hospitals NHS Foundation Trust, Newcastle upon Tyne, UK
Abstract
Background: We undertook a qualitative study exploring barriers and facilitators to patient and public involvement in independent reports feeding into the National Institute for Health and Care Excellence’s Technology Appraisal process. As part of this work, we wanted to create a visual dissemination product that both presented the results and was shaped by dialogue between researchers and the public at a live engagement event.

Objectives: To produce an innovative visual dissemination product to capture the results of our qualitative research and the impact of public discussion on our findings.

Methods: We conducted four focus groups with members of the public (n=26) and 10 one-to-one interviews with researchers working within EAGs. Recordings were anonymised and transcribed. One researcher undertook framework analysis against the Theoretical Domains Framework and a thematic analysis for all focus groups and interviews. From this, key barriers and facilitators to public involvement were identified. These key barriers and facilitators were presented at a one-hour, online event with nine members of the public who had previously attended a focus group. The design of the event was heavily shaped by two public research team members. Forty minutes of the hour-long event was dedicated to discussion of the results. We recruited a live illustrator to capture our results and the discussion.

Results: Our engagement event and resulting illustration was innovative as it promoted a continuous dialogue between the researchers and the wider public. Firstly, the illustration used different colours to clearly highlight input from the discussion, thus demonstrating the impact of attendees’ perspectives on our interpretation. Potential next steps for our work, as suggested by the public, were also embedded within the illustration. Secondly, we took major discussion points from the engagement event, as shown on the illustration, and embedded these into our final report to emphasise the areas of most importance to the public.

Conclusions: The final illustration is an accessible, understandable knowledge exchange tool, presenting the results of our study alongside the impact of discussion with the public. Future studies may wish to adopt or adapt this approach when disseminating research findings.

Funding: Newcastle University Research Excellence Development Awards