Meeting the challenge of research empowerment through co-production and expert patient review

Article type
Authors
Price A1, De Iongh A2, Cartwright E3, Schroter S4, Richards T5
1University of Oxford and The BMJ
2BMJ
3Rosamund Snow Prize Winner
4The BMJ
5The BMJ (Patient Partnership Initiative)
Abstract
Background:
To provide value, research must be ethical, methodologically sound, sustainable, relevant to patients, clinically safe and lead to real-world evidence-based practice. Health researchers seek practical advice on how to integrate patients and members of the public as research partners irrespective of the size or design of the study. Patients need practical guidance on how to comment on research under peer review. This workshop will be enriched by what was learned from encouraging researchers to describe how they involve patients and the public in research and from surveying patient reviewers, authors and editors. This is a 'how to' workshop for combining patient and public research involvement with evidence-based practice from protocol development to patient review.

Objectives:
To provide workshop participants with take-home skills and practical tips for:

- effectively involving patients in research;
- delivering expert patient review;
- writing the public involvement declaration in a manuscript.

Description:
Training will be interactive and include hands-on practice with problem-solving components and practical solutions for research involvement.

Workshop participants will learn how to write a meaningful review, how to address expert patient reviewer comments and what to include in a research public involvement statement.

Researchers and patients will work together in small groups to document patient involvement in a research study protocol using a real-world example, collaborate on writing an expert patient review, address the reviewer comments and co-produce a public involvement declaration.

For each objective small groups will be invited to reflect on:

- potential actions;
- questions;
- happy moments;
- pain points;
- design enhancements for problem-solving.

***Handouts of resources will be provided to support putting skills into active practice***.

We gratefully acknowledge the BMJ Patient Reviewers and the BMJ Patient Panel for their excellent leadership and feedback in the building of this workshop.