Stakeholder engagement process in priority setting for trials methodology research and Cochrane Reviews

Article type
Authors
Healy P1, Bhaumik S2, Sharma T3, Nasser M4, Whiting C5, Working Group P
1National University of Ireland, Galway
2The George Institute for Global Health
3Peninsula Dental School, University of Plymouth
4James Lind Alliance/NIHR
5PrioRiTy Study
Abstract
Background: Efforts continue to identify substantive ways of incorporating stakeholder engagement into every phase of the research process. Empirical evidence in setting research priorities is increasingly demonstrating that the degree of stakeholder involvement can affect the process and outcomes of priority setting endeavours for research.
Currently, all Cochrane Review Groups are required to set priorities for topics for reviews, and are increasingly using more comprehensive processes to set priorities for their work. However, often it is not clear who is involved in the priority setting and the degree of their involvement in each step.
This workshop will explore the priority setting experience of both the James Lind Alliance (JLA) and the Cochrane Priority Setting Methods Group with a focus on stakeholder engagement and related issues.

Objectives: a) to provide an overview of the existing approaches for stakeholder engagement during research priority setting b) to demonstrate the JLA approach to setting priorities for treatment and research, and c) to reflect critically on the stakeholder engagement process during priority setting.

Description: The session will start with an overview of the existing approaches for setting priorities for research. This will be followed by a presentation by JLA on how Priority Setting Partnerships (PSP) identify and agree unanswered questions that matter to patients and clinicians by consensus, and how this method was modified in a novel way in the PRioRiTy study which identified priorities for methodological research in trial recruitment. The PRioRiTy team will describe how they used a modified PSP to enable a comprehensive, rigorous and inclusive priority setting process for research methodology with participation from key stakeholders, including members of the public. The final part of the session will be an interactive learning exercise in which participants will be divided into groups to reflect and report back on stakeholder selection and engagement processes based on examples of research priority setting exercises that will be provided during the workshop.