Article type
Abstract
Background
About 500,000 Filipinos will be affected by stroke at any point in time, with an estimated $350 million to $1.2 billion USD needed to meet the cost of medical care. Most of the cost is borne out of pocket by patients and their families, with limited use of health care by lower- and middle-income groups. There is a lack of established community-based care facilities in the Philippines, and qualified staff to deliver rehabilitation are scarce.
Objectives: Tulong, Ugnayan ng Lingap At gabaY (TULAY) is a 4-year research project funded by the National Institute for Health and Care Research Global Health program aiming to codesign and implement a sustainable self-management community-based program for stroke survivors that is contextualized for the Philippines.
Methods
A participatory codesign methodology informed by Bridges Self-Management is being used, building on distinct phases of surveying current structures and processes of stroke care and rehabilitation, interviewing key stakeholders (government officials, clinicians, Barangay health workers, patients, and families), and reviewing existing evidence. Summaries of outputs from surveys and interviews, including photos, videos, audio recordings, field notes, and information from community engagement events, all feed into the codesign. A series of codesign meetings, with key stakeholders from municipalities in Luzon, Visayas, and Mindanao, are underway to develop resources for stroke survivors and their families and training materials for health care staff and village workers that are contextualized, relatable, and sustainable. These resources are likely to include narratives, advice, and experiences from stroke survivors and information to increase awareness of stroke and build confidence, knowledge, and skills about ways to live well and connect with disability services.
Results
The project is ongoing across Luzon, Visayas, and Mindanao. Data from 6 community engagement and involvement (CEI) events held in early 2024 in Visayas and Luzon with community leaders, people with stroke and other disabilities, health care staff, and village (Barangay) workers have generated vital contextual data and topics for inclusion. Lack of current resources featured strongly, along with the need for stories and education.
Conclusions
We will present the results of the CEI events that reveal the importance of this community-based initiative.
About 500,000 Filipinos will be affected by stroke at any point in time, with an estimated $350 million to $1.2 billion USD needed to meet the cost of medical care. Most of the cost is borne out of pocket by patients and their families, with limited use of health care by lower- and middle-income groups. There is a lack of established community-based care facilities in the Philippines, and qualified staff to deliver rehabilitation are scarce.
Objectives: Tulong, Ugnayan ng Lingap At gabaY (TULAY) is a 4-year research project funded by the National Institute for Health and Care Research Global Health program aiming to codesign and implement a sustainable self-management community-based program for stroke survivors that is contextualized for the Philippines.
Methods
A participatory codesign methodology informed by Bridges Self-Management is being used, building on distinct phases of surveying current structures and processes of stroke care and rehabilitation, interviewing key stakeholders (government officials, clinicians, Barangay health workers, patients, and families), and reviewing existing evidence. Summaries of outputs from surveys and interviews, including photos, videos, audio recordings, field notes, and information from community engagement events, all feed into the codesign. A series of codesign meetings, with key stakeholders from municipalities in Luzon, Visayas, and Mindanao, are underway to develop resources for stroke survivors and their families and training materials for health care staff and village workers that are contextualized, relatable, and sustainable. These resources are likely to include narratives, advice, and experiences from stroke survivors and information to increase awareness of stroke and build confidence, knowledge, and skills about ways to live well and connect with disability services.
Results
The project is ongoing across Luzon, Visayas, and Mindanao. Data from 6 community engagement and involvement (CEI) events held in early 2024 in Visayas and Luzon with community leaders, people with stroke and other disabilities, health care staff, and village (Barangay) workers have generated vital contextual data and topics for inclusion. Lack of current resources featured strongly, along with the need for stories and education.
Conclusions
We will present the results of the CEI events that reveal the importance of this community-based initiative.